At Healthwatch Calderdale we work on a variety of projects. We respond to feedback from the public to help influence the direction of our work as well as participate in national cooperative work with other organisations. This allows Healthwatch to be reactive and flexible when new problems come up in the community.
If there are issues you think we should be working on, or there are any problems with any of the reports below, please contact us on firstname.lastname@example.org or by phone on 01422 399 433.
Latest Reports > National work
Health and social care experiences of people with hypermobility spectrum disorder (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS)
Local Healthwatch across Yorkshire and the Humber published a report in 2019 on the health and social care experiences of people with hypermobility spectrum disorder (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS). The issues were then raised locally by Healthwatch Calderdale, which led the work nationally via an adjournment debate in the House of Commons and on social media (2019). At this point, Healthwatch Calderdale started to receive feedback directly from people across the country sharing their own experiences of NHS care for these types of hypermobility syndromes.
While we are unable to support people outside of the Calderdale area, we decided to collate the national feedback as an update to our work as it shows the issues we discovered in our work in Yorkshire and the Humber are also being experienced in other parts of the country.
In this report you’ll find:
• Main themes
• GPs lack of knowledge about the condition.
• Difficulties obtaining a referral and diagnosis issues
• Poor access to NHS care and feedback on private assessments
• Life impact and lack of joined-up support for children
• Ideas for improvement
Healthwatch Calderdale has now published its Hypermobility Syndromes report. We had over 250 responses to the survey, thank you to everybody who took part.
The purpose of our project was to collect the voices of adults with hypermobility syndromes in Yorkshire and the Humber in order to develop an understanding of their health and social care experiences. There was also an opportunity for participants to tell us anything else that they felt was relevant to their experience of their condition.
Long Term Plan #WhatWouldYouDo
What would you do to improve health and care services in Calderdale?
UPDATE: to find the full report of engagement findings click here
Health and care leaders, frontline health and care staff, patient groups and experts came together to produce a ten-year plan. It was published in January 2019 and aims to transform the health service over the next 10 years into one that is fit for the future, sustainable and where taxpayers’ investment is used effectively.
Download Files:Healthwatch: Our NHS Long Term Plan - Final report
- Access to care 0
- Hospice 1
- Engagement 1
- Inequalities 1
- West Yorkshire 2
- National work 3
- annual reports 1
- Children and Young People 2
- Hypermobility 1
- Covid-19 3
- General Practitioners (GP) 4
- Hospitals 8
- Dentistry 3
- Social Care 4
- Enter and View 3
- Long term health conditions 2
- Mental health 3
- Council and Clinical Commissioning Groups 3